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Old Fri Feb 15, 2013, 09:07 PM
LoveRapheal1 LoveRapheal1 is offline
Join Date: Dec 2012
Location: New York
Posts: 54
Alternative Therapy

I just read a book on alternative therapy. You must be careful. There are herbs that can help but they can also interact poorly with other meds such as cyclosporine or birth control. I would consult your doctor before taking any herbs. I wanted to follow a holistic method but I am still recovering from this ATG treatment. I read that certain herbs also increase the dangers of graft host rejection if deciding for a transplant. I decided to order the book and research holistic and alternative therapies to use after all treatment has failed. I do not think I will try any of the herbs. There are many herbs that you can take. I did find an interesting juice method in the book that I ordered online. The book is called Conquer Low Platelets. It costs 45 dollars but it is highly worth it. It gives you a list of herbs that actually work to cure the root of the problem in the immune system instead of suppressing the immune system. It is an excellent book and worth it. You will find meds, herbs and a juice diet to increase your platelets. Go to I found foods, juice diets, regimes and herbs that all work to cure the immune system which is usually caused by dysfunction in the liver or digestive system. I am going to purchase some vegetables to create a juice diet to increase my platelets ASAP. Check it out if you can and let me know what happens and how it works for you.

Originally Posted by KMac View Post
Hi everyone,

I am fighting SAA, and just joined the forums yesterday. I've entered more of my details under the 'Tell Your Story' forum.

In this thread, I'd like to expand further upon my experience with low WBC. In particular, I would really appreciate hearing from anyone:

a) With a similar low WBC post-ATG for SAA (i.e. good response in platelets and red blood, less response in WBC).

b) With experience using alternative treatment (i.e. naturopathic, oriental, etc..) to improve WBC.

I received ATG 3/07/2012. It has been a challenging 7 months, but I'm doing much better now. My remaining large issue is a very low WBC on my weekly CBC. My ANC is usually about 500, my lymphocytes about 350. I receive neupogen weekly.

I live near Denver, Colorado, and I'm treated at the Colorado Blood Cancer Institute (CBCI). My experience at this institution has been excellent. I highly recommend them. But in addition to my treatment at CBCI, I am considering alternative therapy.

Although my WBC is quite low (usually about 1.0), it has shown promise in the following respects:

1) Prior to horse ATG, my lymphocyte count was actually normal (i.e. well above 1000).

2) Prednisone after ATG led my ANC to rise in about 2 weeks from 0 to 630.

3) After the prednisone taper (2 weeks post-ATG), my ANC fell to 100. Neupogen administration began three times a week, and it worked almost immediately, albeit slowly at first.

4) I am on a slow trend to need less neupogen. I used to get neupogen on Friday, and my ANC would be around 500 Monday. In recent tests, my ANC has been near 1000 five days out from neupogen.

5) In July, I caught a fairly bad cold. While fighting the cold, my ANC rose from under 1000 to over 2800 on it's own without neupogen, and I did not need neupogen for about 3 weeks.

6) My bone marrow biopsy last month showed all normal white blood cells. Not enough of them to be sure, but no mutations.

7) Last month, we tried a test where I received neupogen, and then my ANC was tested again within 24 hours. It had risen from ~600 to over 8000! The neupogen even improved my lymphocyte and monocyte counts. My doctor sees this as a very good sign that I have white blood cells ready or near-ready to go in the marrow, but I have a mobilization issue (i.e. an undifferentiated stem cell wouldn't have time to turn into a fully developed neutrophil in the blood within 24 hours).

So in some respects, it seems I am close to surmounting this low WBC problem.

Thank you to everyone who read this long post! I had a lot of information to pass on.

P.S. I considered putting this on the Alternative Treatments forum, but thought AA was the more apt choice, since I appreciate any feedback on my WBC concerns, be it 'alternative' or otherwise!
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