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greg-
You sound like you're similar to what I had. I was watch and wait for a while. I was also about 6 weeks apart w/transfusions and could have stayed with the "watch and wait" option.
For me, it worked out. As it is, I had iron overload and was on Exjade for 6 months. (went off it end of Dec. '09). I hope I never have to use it again! I was nauseaus every day. Going to work was not fun.
I also appear to have a genetic tendency for my body not to "recognize" when I have enough iron, so I guess I hold more iron than most people do, due to that. But, I've never been told I had too much iron in my otherwise healthy life , up to this. But, it was something my hematologist tested for. Perhaps was never tested prior to this. Now, I tend only eat red meat 1x week.
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Dx. 6/08 with AA, then changed shortly thereafter to MDS. Campath trial at NIH March '09 and have been transfussion independent since June '09
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