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Victor, it helps to vent and post comments about your frustrations. It took me as caregiver almost a year to settle down. I read non-stop on the subject of MDS, kidney issues as my husband has, all the meds he takes, even where people go for treatment. Now I read sometimes but I go for walks, go shopping, meet up with friends. I also try to get my husband keeping busy. He's been doing the yard and garden for weeks and keeps going right up till he needs another transfusion.
So we are thankful for every new day. But I keep on top of things and ask too many questions of the doctor. Plus I read online all the time, unless I give myself a break for a spell. I keep a sort of diary, listing all appointments, what was said, what change in meds and all that. Keep asking questions here. I wish you the best.
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Caregiver for husband
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