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Old Mon Oct 15, 2012, 08:49 PM
Bambam Bambam is offline
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Join Date: Oct 2012
Location: Vancouver, BC, Canada
Posts: 59
Living in a bubble

Hello, I was recently diagnosed with MDS Refractory Anemia. This came as a huge shock to me and one which I am still finding difficult to believe as I struggle to learn the language and implications of this disease.
After the bone marrow biopsy, I was informed that chromosome testing would take 4-6 weeks. When I rang my Hematologist after 7 weeks, she checked with the Labs and was told it would take 2-3 MONTHS. Does anybody have a similar experience and if so, why would it take so long after I was told a far shorter timeframe? Thank you for your thoughts.
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DX MDS RA Low Risk August 2012. DX Changed to MDS RAEB1. Progressed to AML July 2013. Participated in clinical chemo trial CPX351 and relapsed four months later in March 2014. Maintenance chemo -VIDAZA (AZA) stopped after 4 rounds. Awaiting full report from BMB.
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