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Old Fri Jul 22, 2016, 10:57 AM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 766
Hi Sarah,

What is your age? Normal cellularity is typically 100 minus your age. So a cellularity of 25% would be normal if you were in your 70's.

I am guessing that your injection may be Procrit?? This is an EPO shot. Did they measure your EPO levels first to determine whether it will likely be effective?

Again, the rise in WBC is likely a side effect of the prednisone. Did the doctor say why he prescribed this?

I would still recommend a second opinion from an expert in AA/MDS. Although your hematologist may be the best in the area, having only about 4 patients at the hospital in a year means that he is not an expert in this specific, rare disease. You have time now while you are not transfusion dependent and things are low but stable. You don't have to switch doctors (or even tell the other), just get a copy of your records and get another diagnosis/treatment opinion.

Best of luck!
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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