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Old Wed Aug 31, 2011, 08:00 PM
Robi1Knobi Robi1Knobi is offline
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Join Date: Mar 2007
Location: Austin, Texas USA
Posts: 98
Hi Triumph!

How are you doing these days? I'm curious, how quickly did you see results from the Danazol? I have moderate AA, hgb 8.9 right now, platelets 52 and I'm debating over getting another blood transfusion soon. Do you have the TERC mutation also? Thank you, Linda
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Linda, 47 yo, married, mother of a teen, moderate AA w/ TERC mutation (2007 NIH), Pulmonary Fibrosis 2010, was on Danazol study (Aug 2011-2013 & restarted 9/14/15), last transfusion May 2011. On Promacta now. Needing a double lung and stem cell transplant.
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