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Hi Neil,
Thank you for your reply. My daughter had a bone marrow biopsy in October 2012.
The doctors she has seen (rheumatologist, neurologist, oncologist, hematologist, gastroenterologist) have ruled out everything under the sun it seems like. She does not have Anemia at all. She has a positive ANA so they thought she had Lupus. But they have done so many tests to rule that out.
They have ruled out Epstein Barr virus. They have ruled out the bacteria.
And allergies. The only thing I have not asked them to test for is chemicals. But I dont know who to take her for that.
Her bone marrow biopsy has concluded that she has a Hypocellular bone marrow with decreased trilineage hematopoiseis. I dont know what that means. It says dyspoiesis in all three cell lines. The pathologist notes say there are adequate numbers of myeloid percursors present and the possibility of this representing the early stages of marrow failure syndrome cannot be excluded.
I dont know how to read the rest of the report. Her hematologist is so crowded that I waited 2 hours and didnt get to see the doctor to ask questions last time we were there because she had 90 patients and was the only doctor on call. The specialist was super flustered. (as was I because she wouldnt give me the time of day other than tell me to reschedule and take my co payment) They dont know what is wrong with my daughter and she keeps getting fevers, cant make it through the day at school, and looks pale. They tell me to get her blood work repeated every month and when we go to the doctor it is just the same thing, come back in a month and we will see if she is better or not.
All we know is that she has low WBC 2.2 and that her lymphocites 1137 are also low Neutrophils 774 are low and her monocytes 167 are low. This has been up and down since February 2012.
I have contacted City of Hope with (no reply yet) because no one can tell me why...they say she has had a virus for almost a year, (which she has not even been sick but once) and that it will go away, but she keeps getting tired, keeps getting these phantom headaches, fevers, body aches etc. She has had a MRI of her brain for the headaches with no conclusion besides a cholesterol granuloma which they said is normal and every single blood test known to man. She was passing out giving blood because they were doing it so often.
thanks again Neil for your reply.
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