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Old Thu May 3, 2018, 11:13 AM
dystopicutopia dystopicutopia is offline
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Join Date: May 2018
Location: ON
Posts: 1
Chronic GVHD 2 years post transplant?

Hi all - I'm new here. This seems like a very welcoming community, glad to have found it

My mom had AML diagnosed December 2015 and had her BMT in May of 2016. It has been the bumpiest road ever imaginable (her longest hospital stay was 10 months!) with complications of acute GVHD and infections.

The past 6 months have thankfully been a bit more stable, but she continues to struggle with cGVHD. She finally got taken off Prednisone last week, but her liver enzymes are up again and it looks like she has skin GVHD too (manifesting as scar tissue).

Just looking for advice or your stories...it was my understanding that the further you are out from your transplant, the less the chance of GVHD occurrence is. It doesn't look like this is the case. Any one else have stories to share with GVHD?

Thanks in advance!
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