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Old Wed Sep 26, 2007, 08:46 AM
marc marc is offline
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Join Date: Apr 2006
Location: Aurora, IL
Posts: 11
New to site

Hello everyone,
I am new to the MarrowForums site and thought I would introduce myself.

My name is Marc and I am 46 yrs. old. My wife and I live in Aurora, IL. I was diagnosed with PNH and severe AA in feb. 2006. So far I have tried ATG (Horse), Procrit, steroids, etc... but have not seen any benefit. I average a blood and/or platelet transfusion every 10-14 days. My WBCs have not been a problem.

I am treating my PNH with Soliris and so far that has been helping so it is the AA that I am working on now. I do not have a sibling match for a BMT and the odds of success are a little too low for my liking right now to try one.

I am talking with my Hemo doc about a second round of AT (rabbit) or Campath or Zenapax. Has anyone tried these last two drugs yet?

I look forward to hearing from others with AA and wish everyone good health.

Marc
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Marc, Severe AA and PNH; diagnosed April 2006; Treated with ATG, currently taking Soliris
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