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Old Wed Nov 29, 2006, 03:54 PM
John R John R is offline
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Join Date: Aug 2006
Posts: 29
Quote:
Originally Posted by knstone View Post
I've had a great response to Thalidomide. It seems that many doctors don't try it. I recently noticed that UCLA has a study going using Thalidomide for MDS.

Have any others on this site had good results?

If it stopped working, what did you try next?

Just trying to get info and see if the forum will generate some usage.
Thalidomide didn't work for me. It did give me neuropathy in the toes of both my feet.
John MDS-RCMD now 46, dxed at 42.
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