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Bailie,
I find it interesting that you say "I have not felt I sacrificed anything by having the SCT". To me this would imply that your life has gone on as it had been prior to the SCT. Yet you also say ". . . with the SCT my "quality of life" has been very acceptable." Does that mean you life prior to the SCT was just "acceptable"?
For me, MDS has impacted my life and made it close to unacceptable. I am afraid the SCT would push it over the border to unacceptable. I want to be sure to emphasize this is only my opinion! I would never suggest any treatment (or lack of treatment) to anyone. That has to be a personal decision each one of us make.
Cheers
Data
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Prostate Cancer: Treated in early 2013 with HDR Brachytherapy. MDS-RCMD: Oct 2014. Biopsies: 46,XY,t(7;18)[2]: 46,XY,del(7)( q22)[3]: 45,XY,-7[6]: 45,XY,-7[10]: 45,XY,-7[13]. HSCT in April 2016.
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