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Old Fri Oct 31, 2014, 10:21 AM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
RCMD

Hi Data!
As far as I understand you have low risk MDS - the blast cells in the bone marrow are less than 5%.

If so you should not have a STC now. In Europe you should not get Vidaza or Dacogen - these drugs are only for high risk patients here.

You should try EPO drugs for low HGB if you own EPO is less than 500. You WBC are low - look out for infections! Your platelets are low too - look out for everything that can decrease platelets like pain killers

Good luck!
Kind regards
Birgitta-A
75 yo dx RCMD 2006 with HBG 7.0 and severe bone marrow fibrosis 2006. Supportive treatment with txs, iron chelation and Neupogen injections for low WBC until 2010. Thalidomide 2010 with positive result and Revlimid since 2013 with good result until Sept 2014. Now tx dependent.
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