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Forgot to mention that they should screen you for the H pylori bacteria that causes ulcers as it too can have an impact on bone marrow. There have been cases where once the h.pylori was resolved, so too was the MDS. It's not common though but should be ruled out just the same.
Many chart their results in order to see trends. Following trends help you track the progression or lack of it.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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