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Old Tue Jun 6, 2017, 04:09 AM
mahendra_413 mahendra_413 is offline
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Join Date: Feb 2017
Location: Bangalore, Karnataka, India
Posts: 6
Hi Cheryl,

My son's chimerisam had fall to 35% donor. Tried DLI once at the time of 52% donor and helpless.
Only option left over for us is go for next transplant and chance of success is 40% as per the doctor. No option for us. It is really tuff situation. The last 6 months effort gone waste.

Cause for failure is unknown. The marrow biopsy culture was shown TB positive. Looks the TB bacteria is suppressing the cells. He had splenomegaly too that might be another cause for low counts.
He is under growth factor injection till day 180+.

Now he is suffering from respiratory distress and hospitalized since 1st June. Under O2 and IV antibatics. Chest x-ray not show any infection and culture is negative. It looks more of viral infection.

Multiple issues and it's very tuff time to manage.

May be they start the transplant after he recovers.
__________________
Father of Yekshit. K, 1 year Baby boy, SCID, PBSCT on 23/11/2016
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