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Old Wed Jul 21, 2010, 07:27 PM
alyse alyse is offline
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Join Date: Jul 2010
Location: new york new york
Posts: 12
Campath trial

Hi:
I just met with NIH doctors on Tuesday to discuss participation in Campath trial. One goal of Campath vs. ATG is that patients will NOT be on cyclosporine. However, NIH doctors did say they reserve the option of giving it to patients to boost counts if the Campath isn't working on its own (or only partially working). I should have asked how often they have used cyclosporine with patients in the trial.

I would love to hear from more people who have been in the Campath trial including those who had it a few years ago. I am an AA patient who recently relapsed from ATG and Cyclosporine after less than two years. I did fabulously on ATG but had many side effects post treatment. I have heard that Campath is a more benign treatment. Still I am concerned because so few patients have used it and there is no long term data available on success rates. I must make a decision soon to be in the Campath trial or do another round of ATG.

Thanks for any comments.
__________________
Alyse, dx AA Oct 2008, ATG+CSA; relapse May 2010; Campath trial Aug 2010; good counts 2011- Sept. 2013; then re-dx MDS borderline AML,
Nov. 2013, Vidaza+Pracinostat trial; Jan 2014, considering chemo/transplant.
Please donate blood and platelets.
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