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Old Sat Sep 11, 2010, 03:11 PM
Greg H Greg H is offline
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Join Date: Sep 2010
Location: North Carolina
Posts: 660
Worrywart Doc

Lisa Z,

I think this feeling about Campath could be a peculiarity of my doc, perhaps based on some bad experience with it in the context of transplant, as opposed to being used as a standalone therapy. She is very focused on the transplant process itself and very cautious about anything that could lead to complications during that process.

So, for example, she's cool with me starting on immunosuppression with cyclosporine, but not with ATG, because ATG is very important post-transplant and she wants to reserve it for use then.

I'm going to talk all this over with my local doc, who is not as transplant-focused and probably has a better feel for why I might be looking for alternatives to transplant.

You are right on the money about "buying time."

I have no matched sibs but three matched donors from the registry.

Greg
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Greg, 59, dx MDS RCMD Int-1 03/10, 8+ & Dup1(q21q31). NIH Campath 11/2010. Non-responder. Tiny telomeres. TERT mutation. Danazol at NIH 12/11. TX independent 7/12. Pancreatitis 4/15. 15% blasts 4/16. DX RAEB-2. Beginning Vidaza to prep for MUD STC. Check out my blog at www.greghankins.com
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