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Old Sat Jan 19, 2013, 02:09 AM
Heather8773 Heather8773 is offline
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Join Date: Jan 2013
Location: Houston, TX
Posts: 254
Mmmmm ... Very interesting. My husband painted cars and worked as a mechanic from 16-20 at 20 he has worked for ten years in commercial ac and refrigeration ...smokes also.. So as you can see half of his life exposed to chemicals and now has developed PNH....
It's hard to win the battle against chemicals ... Whether in food (like HFCs ..cheaper +storage life= big $ = greed won over health) or other exposure. It is truly unbelievable what $ has approved to be "safe "
Chickens pumped w hormones and antibiotic s to turn a profit... Yikes!!!
we can share experiences and hope that leads to answers and a change
I hope to read blessed news for u all!

Thank God HE's here to help us through these dx's.
__________________
Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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