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Originally Posted by katie
My mom is a two time breast cancer survivor who was diagnosed in September. She has blood transfusions every 18 days. Her platlets have recently dropped along with her white blood cells. She has strange red spots on legs and arms and doctors do not know what they are. I am concerned that they are just letting her go. I want to know how long she has but cannot get any answers. Please respond if you have any knowledge of this. Thanks.
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katie,
It would help to know your mom's age, MDS subtype, and overall health status, i.e., if she has any other major health issues. There are situations where transfusions are the safest treatment and other situations where drug treatments make the most sense. It's the job of the doctors to recommend which is best and explain why to you and your mom.
Red spots could be petechiae, a symptom of low platelets, but the doctors would presumably know that. Is at least one of her doctors an MDS specialist?
The best way to help your mom may be to learn what you can about MDS (pick up the AA&MDSIF
free information packet if you don't already have it), make a list of questions to ask her doctors, and make sure you get answers.