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Old Wed Aug 6, 2014, 05:06 PM
triumphe64 triumphe64 is offline
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Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
Quote:
Originally Posted by Laurie S. View Post
Thank you for replying; we'll reach out for the 2nd opinion if my husband's doctor doesn't follow up next week. He's been on the cyclosporine for 7 weeks so far, but I'm encouraging him to go to Cleveland if his response doesn't kick in by his next appt on Tuesday. I've been reading about Zenapax, too...is it potentially effective for both the CLL and and PRCA?
My experience is only with PRCA. I know he has patients with combinations of conditions. I believe there are several options for treatment, but every person responds differently.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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