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Old Thu Aug 7, 2014, 07:17 PM
triumphe64 triumphe64 is offline
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Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
Quote:
Originally Posted by lainnyc View Post
My husband's CLL doctor has seen 10 other people with PRCA over the years, which I understand is more experience than other doctors generally have. I'm hopeful that Dr. Maciejewski's PRCA expertise can better inform the next step. In the meantime, I so appreciate this site and your participation; we haven't found any other people with this combination, so we're back and forth between CLL and PRCA to gather as much info as we can.
That is a great amount of experience with PRCA.
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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