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Old Fri Aug 15, 2014, 11:03 AM
Laurie S. Laurie S. is offline
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Join Date: Aug 2014
Location: New York, N.Y.
Posts: 11
Good morning, I'm just catching up w/emails, I sent a private msg to Renée, too. My husband was just approved for the new CLL drug, Imbruvica, and we'll see his CLL doc on Thursday to get her recommendation re: next steps. The cyclosporine doesn't seem to be working; after 8 weeks, Larry is still getting transfusions every week or two, his hgb is in the high-6's, low 7's, and the fatigue is very hard on him. If his doc hasn't called Dr. Maciejewski, we'll call his office on Thursday to get an appointment for a 2nd opinion.
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