[PaulS]

Hi and thanks again for the responses - I had a BMB in October after my numbers dropped and it was essentially the same as the first one. I'm not sure if I was tested for PNH - I did just have a number of tests to see if my cells were breaking up (hemolysis) - which were all negative. My diagnosis is refractory anemia with multi lineal dysplasia. The doctor thinks the drop might have something to do with the intestinal infection I had - that coincided with the first time I needed a transfusion. I also have recurring skin nodules - they look like hives but are more painful than itchy - which makes us think there is an autoimmune component to my MDS... Thanks again for the help.