|
treatment plan?
Still waiting for new biopsy results but last blood test showed decrease in WBC and platelets - not so good. Pending new BMB results, the treatment plan is to:
1. reduce immune suppressing drugs;
2. begin treatment with Vidaza and Venclexta -- anyone ever heard of this?
3. maybe DLI. This makes me nervous but doctors seem to think it might work.
If that fails maybe another transplant - or maybe another drug or drug combo - hoping BMB isn't so bad and Vidaza works its magic as it has for a couple others on this board.
Disappointing turn of events - but reinforces the need for me to be positive and faithful. The road ends at the same place for everyone - the trick is enjoying the ride - even when its dark and stormy...
Paul
__________________
Lower risk MDS diagnosed 2012. Recurring skin nodules treated with prednisone, otherwise watch and wait. HG dropped from 11.5 to 8.7. Kept going down to 5. Vidaza didn't work. BMT from MUD on September 10 2015
|