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I seem to be sleeping a lot of the time. Slept all last night and 3 sleeps during today. Plus more breathless on minimal exertion.
We're up for the weekend with my son and his family in Castleford. I think I'll ring Leeds on Monday morning and see if they can see me on Tuesday for the bone marrow and get treatment under way sooner rather than later.
Does that sound reasonable/feasible?
I've never been like this.
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Andy, 68, retired GP, husband of Charlotte for 45y. MDS diagnosed 2001, treated with daclizumab in 2004. Now dveloped into PNH.
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