[junglegirlsue]

Hello! My Mom was diagnosed with MDS this week. She is 73 and hers came from chemo from breast cancer treatment 10 years ago. She is low in red blood cells and has excess blasts. They are going to keep her going with transfusions. I have a couple of questions.

Can you do anything to make the transfusions last longer? She is very active. Would it help it she cut back on her activities? What about excercise? The dr said ok if you want to. My position is save your energy for what you really want to do like play bridge and leave the housework and chores to me. Sounds like paradise to me but makes her mad. She thinks I am babying her too much.

Also the doctor said iron problems won't hapen until 100 transfusions. The literature from the MDS foundation says it is around 24. Has anyone had problems with this?

My son and I live with my Mom. We love her and want her around for years to come. I would love to hear advice from people who have lived with this for years. Thanks!