View Single Post
  #30  
Old Fri Jun 5, 2009, 09:56 PM
sandra sandra is offline
Member
 
Join Date: Mar 2007
Posts: 35
Quote:
Originally Posted by Nanny W View Post
I have a lot of question about bmt. my grandson will be receiving one as soon as a donor is found and I have searched out a lot of web sites regarding this but would like to talk to other parents or grandparents who hve allready gone through this with their child
Hi!

One way to go is to check out caringbridge sites (online journals) of families who's children have recently underwent BMTs for AA.

There are two kids in Canada about your grandson's age:

Evan, he had his BMT at Sick Kids in Toronto, his mother is very knowledgeable and the site is very informative

http://www.caringbridge.org/visit/evanmacneil

Aurora had her transplant at Children's in Calgary, I'm amazed at how well she's doing considering she only had a 4/6 match

http://www.caringbridge.org/visit/aurora

In US there is Faith who had her transplant with Dr. Margolis in Wisconsin and is doing well one year post transplant

http://www.caringbridge.org/visit/prayforfaith

18 year old Grant is still in Wisconsin after 9 mo in hospital, but he might go home soon

http://www.caringbridge.org/visit/grantbeltrami

Kayleigh had a sibling donor, but she had a long recovery due to the fact that her initial team of doctors overestimated the seriousness of her GVHD and she got way too much steroids

http://www.caringbridge.org/visit/kayleighinaz

All the best to your grandson.

Sandra
Reply With Quote