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Thanks to ALL of you who reponded to my post.
I talked to a ER resident who happened to be on my labour and delivery ward today about the BMB. She said she would suggest to ask for the sedation. That's what I am going to do for sure.
To Greg,
We are in Canada but we are seeing a hematologist in a university teaching hospital. Hopefully she sees enough MDS cases. I did ask around and I know she's got pretty good reputations...
It's scary because when I used to work in a long term care facility, I have had a patient with MDS.
Since we are not in US, the NIH trials will not even be a choice for us......
Again, thank you so much!
May God continue to bless us all
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Dad, 63, male, low platelets, found out in 1994, was 50 in 1994, now it's 28. WBC ok, RBC slightly/occasionaly low. not on any meds other than vitamins.
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