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Old Mon Aug 17, 2009, 04:22 AM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
Husband with MDS

Hi Ann,
Too sad with your husbands MDS diagnose and symptoms that made you cut your 53rd anniversary short!

You know nobody knows how long a person will live - I have never understood how doctors can tell patients that they will live 2 years or less.

Do you know anything about how your husbands MDS is staged?

Vidaza is supposed to be the best drug for many patients with MDS but the counts (the red blood cells, the white blood cells and the platelets) can decrease during the first four cycles before the patients improve.
Kind regards
Birgitta-A
70 yo, dx MDS Interm-1 May 2006, transfusion dependent from dx, have now received 96 units of red blood cells, Neupogen injections 2 times/week for low white blood cells, Desferal for iron overload, asymptomatic
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