Quote:
Originally Posted by PattiDean
Hi MagicBob,
Dean is feeling down right now, worried about what is happening, also concerned that he is now dealing with AML. His BMB is early Monday morning, and we won't find out the results until July 29th.
Dean counts as of yesterday were:
WBC - 1.1
ANC - 0.6
RBC - 2.10
Hgb - 8.0
Plat - 14
The doctor gave Dean an injection of Procrit. No Neupogen, he told us because the white blood cells are the leukemia cells, and he doesn't want to stimulate those cells right now until we find out what is happening. Dean will probably need transfusions next week, but his oncologist doesn't want to do any transfusions before the biopsy.
Dean's doctor does tell us, depending on the results of the biopsy, that he may put Dean on Vidaza, or see if he can go into a clinical trial. Waiting and wondering is so hard, isn't it? Dean's last treatment with Dacogen was the end of May.
Keeping you and your wife in our thoughts and prayers. We will let you know when we get the results of the BMB, we are scheduled to see Dean's doctor on July 22 for the first results and the 29th for the rest of the results. Will be thinking of you on the 19th. Lots of good wishes are being sent your way.
Lots of hugs, Patti and Dean
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Patti and Dean, thank you so much for all that you are sharing. I can not believe that are Counts are almost identical, also that we are the same age, and we both have BMB's scheduled for next week.
I am going through the same emotions as Dean, as my doctor has been thinking that AML could be rearing it's ugly head.
As you can see we live in Mechanicsburg, Pa, this has been our new residence since Sept. 2011. (to be near our daughters) We lived in Sarasota, Fl. 18 years, and at The Villages, Fl. 3 years and it was there that I was diagnosed with MDS.
While living Florida, my MDS doctor was Dr. Dr. Komrokji at Moffitt Cancer Center, a very knowledgeable MDS doctor and is part of the team with Dr. List.
Another tie-in with your area is my Post name 'MagicBob', I am a magician and I attended many magic meetings in Clearwater. Sad to report that I
don't have any magic tricks in my hat to get rid of this baffling disease.
My wife Dru and I are praying for you guys, a wishing good BMB results.
MagicBob