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Day +21
Thank y'all so much for those who have been praying for us! Please keep praying!  so far my husband has been doing very well and I thank God , all the people praying, and his medical team!And of course his Donor!!!
We moved into the condo last night so we are only 1.9 miles away from the hospital. Comforting and will make the 3xs weekly appointments easy.
Im proud of him for heeding the advise his medical team has been giving him. They told us the next two months continue to follow the guidelines and take it easy. In a couple months they will help him implement more activity and that makes sense to us bc it takes time for the incredible amount of work thats taking place inside to complete.
So step by step
But we're still praying for no GVHD complications and continued healing.
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
Last edited by Heather8773 : Fri Nov 1, 2013 at 07:44 PM.
Reason: Thanking donor as well!
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