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I know what you are going through
Hi, Lisa.
I am in the same boat as you. Your numbers are a bit lower than mine, but low nonetheless. I, too, have a matched sibling. I'm 47. So, I've been told that the decision to go forward with the BMT is mine and that, I think, is a terrible decision to have to make - what if you guess wrong? I wish I could tell you that I have come across some sure-fire way to know the right thing to do. I can tell you that I have gotten several "second" opinions. All they can tell me is that they can't really tell me anything. But at least it helps to get more information so that you aren't necessarily groping in the dark. That, I think, is your best ally in all of this. For me, I may have to decide to have the tranplant if only because I can't live in limbo like this for too much longer, waiting for things to get worse. It takes a huge toll.
I'd like to compare notes as you go through your process.
All the best,
Beth
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