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Old Tue Feb 14, 2012, 01:41 AM
KimO KimO is offline
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Join Date: May 2008
Location: Chattaroy, WA
Posts: 48
I just wanted to provide some encouragement that with your great response to ATG you would be very likely to be able to achieve remission should a relapse happen at some point in the future. While there is a fairly significant number of those that respond to ATG that do relapse, there is a greater number that do not so the odds are in your favor. Finally, many who relapse are able to recover counts with cyclosporine alone, which was the case for my daughter.

I would also encourage you that the feeling of vulnerability and waiting for the other shoe to drop will most likely diminish over time. In our case, the relapse actually had the benefit of causing us to face that fear and overcome it.
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Kim, mom to Shauna, SAA 10/2007 at age 19, ATG/Cyclosporine 12/2007, end cyclo 4/2009, relapse 8/2010, and 9/2012, counts recovered on cyclo alone 300 mg/day x 2.
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