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Old Fri Jan 31, 2014, 03:16 AM
triumphe64 triumphe64 is offline
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Join Date: Feb 2008
Location: Dallas, Texas
Posts: 455
I just remembered that there is an event for AAMDS this Sunday in Phoenix. There won't be any PRCA people, but there will be some others familiar with aplastic anemia, the next closest thing, and some reps from AAMDS. That will be helpful. It's too late to get a shirt, but a good way to start learning.

https://friendraising.towercare.com/...dCode=J9H2MHKS

Ron Duncan
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Dallas, Texas - Age 81 - Pure Red Cell Aplasia began March 2005 - Tried IVIG - Then cyclosporine and prednisone. Then Danazol, was added. Then only Danazol . HG reached 16.3 March 2015. Taken off all meds. Facebook PRCA group https://www.facebook.com/groups/PureRedCellAplasia/
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