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Hi Neil - well I didn't get anyone's details but a bus load of us from the country had some good chats on the journey. Our support group meets once a month and I know most of them, and often have a cuppa with a friend who had a BMT 7 years ago. She is such a wealth of information too.
She has turned 50 this year, so still quite young really. And who knows I may be in my 40s before I have BMT. Hope I'm not hanging in no-mans land for that long! Anyway, my life is ok for now. Just have to keep those infections away.
Thanks for caring Neil. Julie xo
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Julie (38yrs); dx AA 1996 & treated w/ATG, cyclosporine & G-CSF; 2010 dx int-1 secondary MDS, low platelets, on prevention antibiotics, fevers of unknown origin, MUD found for BMT when the time is right, which is now! MDS transformed to AML after many infections.
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