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Old Thu Apr 20, 2017, 01:56 AM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 766
Hi lcl,

Has your son been tested for the genetic causes of VSAA?

Have they started the transplant search? Do they have a plan to move to transplant after a certain number of months?

It would be good to have a back-up plan ready, should it be needed. A transplant may be the required cure.

I do hope you see some sign soon!
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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