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Old Sun Mar 6, 2016, 03:31 AM
curlygirl curlygirl is offline
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Join Date: Jun 2013
Posts: 151
Hello! It's been a few months since I updated and wanted to again.

1) My son got strep twice over New Year's. Really it was one time but Amoxicillin didn't cure it so we had to get a second dose of antibiotics of Augmentin. His numbers always take a big jump on Augmentin. The excitement was that WBC went from 3.5 (bad), to 10.1 (also bad, for different reasons), to 5.5 (good). Also, on Augmentin his platelets went to 119k - a new high after falling to 35k after trying to taper the cyclosporine. At the same time I feel that: 1) Between ear infections and strep his only big jumps have been after Augmentin, and 2) the entire purpose of my original post - where he had 8k platelets, then made 70k on his own, then fell to 6k, was when he was on Erythromycin after he started wheezing - makes me think he needs a long term antibiotic. Has anyone else's numbers improved on an antibiotic? His numbers stay the same on cyclosporine but don't "go" up. I'm starting to get thankful for when he gets an ear infection because I can expect the jump in his numbers. I wish someone would just try putting him on 3 weeks of an antibiotic just to see what would happen but I can't get his hematologist or pediatrician to try it. His hemoglobin got down to 9.4 but is now back up 10.1.

2) He has one heck of a wart on his foot from the long term cyclosporine (it came back immediately upon restarting full strength cyclosporine). It is huge. I tried the salylic acid for 6 months and have now moved on to Vicks VapoRub, which is helping. It starts to die but then he takes a bath and the wart regenerates amazingly huge with water. Really, it's like a gremlin, I wish I could post a picture. We have an appointment with a dermatologist on Thurs but most treatments are contraindicated on immunosuppresive drugs. Does anyone have any advice?

Thanks! I hope you're all doing well!

Last edited by curlygirl : Sun Mar 6, 2016 at 08:33 AM.
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