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Old Wed Dec 4, 2013, 05:48 AM
Cheryl C Cheryl C is offline
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Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 843
I get hip pain which wakes me early in the morning - sometimes quite severe - from about 2:30 or 3:00 am onwards. Many years ago my husband and I were camping and sleeping on an air bed when it turned really cold. The air bed was like a slab of ice and there was nowhere else to go because it was pouring with rain and the air bed was an island. My hip pain started after that episode back then and was apparently bursitis.

However the interesting thing is that since I've been on the Intragam (gamma globulin) infusions, for the first 3 weeks or so afterwards, my hip pain pretty much disappears and only resurfaces around a week before the next infusion is due, which is about when my globulins start to drop again I guess.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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