Thread: Worst news ever
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Old Thu Aug 16, 2012, 10:14 PM
Al's Wife Al's Wife is offline
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Join Date: Jun 2010
Location: Jackson, Georgia USA
Posts: 205
Thank all of you SO SO much. It's still just sinking in. I've concentrated so hard the last two years and three months on MDS that I'm embarrassed to say, I have no idea where to go now that it's transitioned to AML. I don't even know what induction means. Is that what he had with the Vidaza when he first began with the MDS or something stronger? I've tried to read a little today in-between spending time with him without him knowing how concerned I am. He knows the blasts are up and that he has been taken off the trial but we were both hoping and praying that there was a chance it was from the Promacta. I'm sure that's not the case, but it's probably going to take a day or two to get a grasp on things again.
We see the Emory doctor in the morning as Al absolutely refused to go to the ER tonight even though he was running a fever, coughing, and has had low oxygen level. He said he wasn't going to spend all afternoon in the ER when the doctor was going to see him at 7:00 a.m. And that was his final word! But at least does feel a little better this evening (on the outside anyway) after he and I both had our pity party.
Thanks for your support and your prayers. We really need them right now and I am so thankful for each and every one of you.
I'll let you know our options tomorrow. Any suggestions or info on what do we do next is greatly appreciated, remembering that Al has the bad cytogenetics.
God bless,
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Linda, Al's wife, 75; dx MDS 5/2010; Vidaza 6/2010; ARRY614 & Sapacitabine clinical trials at Emory, no results, stopped 12/2011. Had BMB at NIH on 6/5/12, blasts 10-15% so he's not eligible for trial there. :eek Promacta trial, Tampa, blasts 25-30% 8/17/12 AML, trying Dacogen now and praying.
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