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Frustration!
Dad had his appt. with the nephrologist today. I find it so frustrating that so few doctors know anything about AA, the treatments, the drugs, etc. I'm just not sure what to do at this point. This doctor had not even heard of Exjade. I explained it was an iron chelator, and that one of the side effects was high serum creatinine levels. Well, Dad's ferritin level is over 4,000 - so what do we do??? Even the doctors don't know what to tell me.
Does anyone have any suggestions?? I'm really concerned about Dad's kidneys - this nephrologist is concerned that Dad is heading toward dialysis! Is despherol a better option??
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