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Old Mon Apr 16, 2012, 03:35 PM
DanL DanL is offline
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Join Date: Dec 2010
Location: Denver, CO
Posts: 590
Sherry,

Looking around at various posts, it seems like most MDS patients get transfused at around 8.0 hgb. There are a few that transfuse at 9.0. Like most health and treatment issues with MDS, this varies according to the doctor and patient. Have you spoken to your doctor? Are you experiencing a higher than normal level of fatigue?
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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