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Old Tue Apr 17, 2012, 05:14 PM
sherryjac2 sherryjac2 is offline
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Join Date: Mar 2012
Location: Bluffton, SC
Posts: 23
Different Strokes For Different Folks, Indeed!

I went for my 7th shot today and mentioned to the nurse that I was concerned about the upcoming week since my hemoglobin was 7.9 last Friday. She drew another CBC today and it was 7.7. She checked with the doc and he sent me for 1 unit of RBC. All went well. I have been very asymptomatic at 8, so maybe they were just delaying until I felt worse? I am very active, and this weekend when I was playing tennis I knew I was losing power. I do feel the need to keep track of things myself and monitor my treatment. The Vidaza company has a program you can download for your computer that allows you to plot your blood values on a graph, keep track of appointments and treatments on a calendar and record in a journal. Thanks for all the replies to my post.
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Sherry Baby 62 Diagnosed 2/11/12 MDS to AML-6; del 20q and trisomy 21; Vidaza 3 month trial unsuccessful; ALLO BMT 7/2/12; Sister Donor 10/10 match; Chronic GVHD mucous membranes, otherwise all's well :0)
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