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Hi Michelle,
Unfortunately there's not a good "natural" chelator out there for iron. Iron is a difficult one to get rid of especially at those high levels and if you still are getting red cell transfuions.
The only effective non medicine way to quickly reduce iron is through therapuetic phlebotomies which is not appropriate for anyone getting transfusions or anyone who cannot maintain a HGB of 11 or above on their own. Sweating will eliminate a small amount of iron through the skin. Some have used infared saunas but with summer just around the corner, it's pretty easy to sweat outside in the sun and boost your vitamin D levels at the same time.
We have found that John's vitamin C levels were low and that was probably do to the long term iron overload. He does take vitamin C, E and CoQ10 to combat the oxidative effects of too much iron. Too much Iron can cause a vitamin C deficiency.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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