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Old Tue Jan 13, 2009, 12:44 PM
Lynn del Lynn del is offline
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Join Date: Apr 2008
Location: Port Chester, New York, USA
Posts: 43
thanks

Hi Sue:

Thanks for your reply. I saw Dr Castro at Sloan Kettering and he is suppose to be a PNH specialist. I was told that I have a small clone but I wasn't told the size or the results of the LDH test. I was very upset when I was told with such a lack of information. I called many times to talk with someone but I still didn't get the results. That was 3 weeks ago and I'm still having pain at the site, my hip and shooting down my leg. I've had many BMB before and I have never had this much pain for so long. I'm suppose to go for the rabbit ATG when they get the results from the BMB. Any information would be helpful. I have gotten much information from a very compassionate friend.
Lynn
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