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Old Thu Oct 21, 2010, 06:31 PM
dmscott65 dmscott65 is offline
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Join Date: Oct 2010
Location: Carmichaels, PA
Posts: 11
I went to first f-up with my hemotolgist on Tuesday (since hATG). My white and red counts were increasing and my platelets had increased from 17 to 30 over the prior 5 days. Dr said that was "encouraging" and he's pretty conservative. I did need an infusion of Magnesium Oxide. Dr. kept asking me if I was experiencing joint pain from the cyclosporine, which I hadn't.....until that night. Oh my.... knees went into orbit about 2:00 am. Felt pretty achy all the next day. Not sure if that was from the Magn or if doctor jinxed me. Felt better yesterday and today. Even drove myself the 60 mile round trip for labs today.

And, yes I did taper down from 70 to 50 mg of Prednisone on Monday. My sister told me that might have been why I was feeling pretty achy also. I drop to 30 this weekend. Not looking forward to that.

Are you having any issues with the MCV numbers? I understand that is the size of the red blood cells, which means the bigger they are the more they crowd out the platelets, WBCs. And, sometimes they mutate and burst. My number was coming down post ATG in the hospital and shortly after I got home. But, I was getting B12 injections in the hospital, too. Now, my MCV is on the rise every time I get labs....I'm concerned about that.
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Donna, age 44, diagnosed AA 9/30/10; treated h-ATG 10/3/10 and cyclosporine to 2012; Oct 2012 Duodenal cancer/Whipple procedure; 7/29/13 diagnosed PNH; July 2014 stable but very low HgB & Platelets(25-35)-Cyclosporine; Prednisone and bi-weekly soliris infusions
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