View Single Post
  #15  
Old Thu Aug 4, 2011, 09:48 PM
Janice M. Janice M. is offline
Member
 
Join Date: Jul 2011
Location: Amherstburg, Ontario, Canda
Posts: 27
Smile Weighing the Options

Greg,

You are right. The word "cure" is misleading. BMT is a cure if you don't die during the process or afterwards due to GVHD or an Infection.
Greg were you referring to me being recommended for a transplant, without symptoms yet? In case you were, the team in London, Ontario were suggesting to ultimately have a BMT but they weren't suggesting it until further down the road when there were at least symptoms and choices of a pathway needed to be taken. That is one of the reasons I was asking about A) does any of the treatments interfer with the success of the BMT and B) the timing of the transplant because as a fit, relatively younger, patient waits for the BMT, are they now at an increased risk. . . so when is the "tipping point" as I call it?

Greg, here are the Canadian Normal Blood value ranges: (from Dr. K. Yee)

Hb over 120 or in the US over 12.0 (11.6)
Plt 150-400 (40); WBC 4 -11 (2.8) ; Neutrophil 2 -7 (.54) (mine)

Again, thanks for the excellent discussion. Through our discussion I realized that partially the reason you have not proceeded to a BMT now is due to work and health care benefits. Sometimes in reading people's situation, I have wondered why they had choosen a particular pathway with their disease, but without all the circumstances the reason behind the choice is never clear. This has been enoromously helpful, and I am extremely grateful. I return to London Hospital on Sept. 21 so this gives me much more information to discuss!


Thanks again,
Janice
__________________
Female, age 52 - Diagnosed May, 2011 Hypoplastic MDS. Cytogenetics showing 2 abnormalities on chromosome 15. Blasts<5%, IPSS of 1. All blood counts low, but no treatment; watch and wait. Registered for MUD; on Feb. 23/12 two donor matches found but returned since not needed yet!
Reply With Quote