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Hi Biker- my husband also has the asxl1 mutation and I have read that it is associated 'with a poorer prognosis'. Each time we meet with his hematologist I keep meaning to ask exactly what that means, but of course forget. Does it mean that he is less likely to respond to treatment? quicker to transform to leukemia or AML? less success with transplant? We will be traveling back to his COE at the end of round 4 of Vidaza (currently on round 3) and will be sure to ask these questions. PS - I see you too are in NY, what center do you go to?
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