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I think you should change providers. I get five days of Vidaza at my local cancer center and then two days at a larger facility (Oregon Health Science University) on the weekends and then have a 21 day break. It seems strange that your facilities can't/don't work together. There could be a reason why they didn't want to give you the full dose of Vidaza. That reason could very easily be the low platelet count. What did they say when you asked them why you weren't getting the full dose, or why you haven't seen a doctor? Is there any problem with insurance?
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age 70, dx RAEB-2 on 11-26-2013 w/11% blasts. 8 cycles Vidaza 3w/Revlimid. SCT 8/15/2014, relapsed@Day+210 (AML). Now(SCT-Day+1005). Prepping w/ 10 days Dacogen for DLI on 6/9/2017.
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