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Old Thu Oct 27, 2011, 06:06 PM
usaf1125 usaf1125 is offline
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Join Date: Dec 2007
Location: Stoughton, MA
Posts: 66
Smile local area.

I have had MDS for 7 years, I don't pay any attention to any of my numbers except my CRT level and my FER level. Have been getting transfusions since 2004, now up to 2 units every 2 or 3 weeks, have had a total pf 277 units, that's why I watch the FER level. I don't let it worry me, won't do any good.. I get blood when the CRT drops below 29, FER was over 3000 for about 5 years, finally started to drop in the last month it's down to 2385. I'm 79, all I want is to see my granddaughters graduate HS, they are 13 & 15. My wife and I volunter with the Castle Island Assoc. as tour guides at Fort Independent on Castle Island ,South Boston. We just got thru with Halloween at the fort, was 22 & 23 October, there were about 9800 people over the 2 days. closed for the year now, will reopen Memorial Day weekend 2012. Quite time now, Thanksgiving and Christmas with the family. Read some good books, try to walk has much has possible. Good luck, don't let it get you down.
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82 yr. old male. Diagnosed in 2003. Started Blood infusion 1/5/2004, average of 2 units every 2 weeks. Inject Procrit weekly 40,000 ML. I have had 344 units of PRC. E Mail leojean@comcast.net

Last edited by usaf1125 : Thu Oct 27, 2011 at 06:07 PM. Reason: change to medication
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