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Hi,
Are you still in the hospital? Are you comuting from Maine? Daily, weekly? Being treated close to home? What is your transfusion and medication regime?
I am considering a mini transplant at Brigham/Women's Hospital through Dana Farber, but will have to move up there for 100 days. I have been quoted rents 4,500 a month.
Wonder what your regime is like.
Donna J.
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f68 MDS; abmt 1/12. ABO mismatch 11 mos. (70) transf. Ferr 3-5k. 8 phlebot. AGVHD to CGVHD. skin,eyes. lungs as of 10/13. muscle weakness &osteo long term steroids.photopheresis 2x wk as of 3-15.pred 20 eod,acyclovir, mepron, voriconazole, pantropazole, lisinopril, montelukast, anoro, azithromycin.
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