[Susy]

KellyM
I can absolutely relate to the feelings your having right now. You wait with such anticipation of your numbers/counts coming back - only to see them not improving. The lump in your throat and tears to your eyes are almost unbearable.
It took 3 months of my numbers continually trending down, before they became stable. Stable is by no means close to what 'normal' numbers would be (hemoglobin 8.4 - platletes 44), but stable has meant to me - no blood transfusions for 17 weeks.
I would continually shake my head when the doctor's kept telling me to be patient, that I shouldn't expect any results until 3 - 4 months, and yes, it might take up to 9+ months...I am now starting to believe, and I am not putting all of my emotions into my blood results.
Each day, I go by how I am feeling better, and that I have achieved another day without a transfusion.
Holding out hope for your daughter.